21 Things Only Someone with EoE Will Understand

The following list was compiled based on my personal experience living with EoE. Feel free to add to the list in the comments.

  1. The reaction you get when you say, “I have Eosinophilic Esophagitis”

  2. Finding your triggers on every food label you read

  3. After throwing out your foods in preparation for an elimination diet

  4. When people assume you can eat anything in the Gluten-Free aisle

  5. Spending hours on Facebook groups and reading medical journals

  6. Having nightmares about eating the foods you’ve eliminated

  7. Finding safe recipes on Pinterest

  8. Becoming the master of food substitutions

  9. Getting a waiter who actually understands cross-contamination

  10. Discovering a snack food that is allergy free and delicious 

  11. Trying to get through a meal without talking about food allergies

  12. Being around someone who has a cold or flu

  13. Dealing with difficult doctors who don’t take you seriously

  14. The inability to do anything after your scope is over

  15. Reading your first pathology results

  16. Getting to add a food back

  17. Running out of standard treatment options

  18. The importance of having an awesome support system

  19. Meeting someone else with a restricted diet

  20. Meeting someone else with an eosinophilic disease

  21. Embracing the rarity of this disease

  • this is brilliant in every way.. bravo!

  • My 6 year old son is the one with EOE but I understand EVERY SINGLE one of these!!!!

  • Love these!! However with the pathology reports, I can now read them better than my own doctors! Also, I have not found anyone with the same eosinophilic disorders that I have so it’s been rough.. but these are perfect!

  • I was diagnosed July 1st 2016 after 4 plus years searching for answers.I had a GI Dr who since last June who has been absolutely no help to me.My last visit on February 9th my last visit to him.I am getting another GI Dr.I thought this was spot on thank you and God Bless.

  • https://www.facebook.com/app_scoped_user_id/1466898870024521/

    Did we just become best friends? YEP!